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Polycystic Kidney Disease Foundation
Only one organization in the U.S. is dedicated to finding a cure explicitly for polycystic kidney disease (PKD) and improving PKD patients’ lives. Here is how the Polycystic Kidney Disease Foundation carries out its mission.
What is the PKD Foundation?
Jared J. Grantham, M.D., and Joseph H. Bruening founded the PKD Foundation in August 1982. At the time, little was known about PKD, and the related genes had not yet been identified. The founders’ mission was, and still is, to find a cure for PKD and help improve the quality of life for those with the disease.
What is the foundation’s mission?
The PKD Foundation carries out their mission primarily through funding to the following three areas: research, advocacy, and education. This is done on both local and national levels to raise awareness for the disease and its impact, as well as to make direct, practical strides toward obliterating this irreversible, life-threatening condition.
What do research, advocacy, and education entail?
Research
Over the years, the PKD Foundation has invested more than $50 million in research, including at least 1,300 clinical, research, and scientific grants; nephrology fellowships; and scientific consortiums. They also provide researchers with bridge funding to help them apply for even larger grants through the National Institutes of Health.
Advocacy
Both their staff and volunteers engage in advocacy to make sure that local, state, and federal policymakers are aware of—and adequately responding to—the needs of PKD patients, their families, and their caregivers.
Education
Through its website, its headquarters in Missouri, and regional chapters around the country, the PKD Foundation offers a variety of resources to help the PKD community live as healthily, comfortably, and productively as possible.
What resources do they provide?
The PKD Foundation website is a great source of information for PKD patients. The PKD Connect page allows you to access:
In addition, they also have the PKD Foundation Blog, free patient handbooks and information packets, and details about the upcoming Walk for PKD community event.
*Polycystic Kidney Disease Foundation. (2020, May 28).
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